DISCLAIMER

DISCLAIMER: It should be noted that the content of this Blog is not intended as inflammatory. It is my life story, but no harm is intended by its content whatsoever. I have a strict "No Slander" policy. Most of the content is purely of my own personal opinion of my life experiences, but mentions of criminal actions I have evidence for. Any thing from Cherie's life, I take from her friends, her family and her diaries, not myself. Thank you in advance for your understanding.
Showing posts with label physical health. Show all posts
Showing posts with label physical health. Show all posts

Wednesday, 3 October 2018

The Once And Future Illisia: aka You CAN Learn Confidence In The Classroom aka DWP Are Not The Enemy


I got an influx of worried and surprised messages after I
posted this on Facebook, because of how out-of-character it is
for me to show so much skin in public. "What happened?!
How are you so confident all of a sudden?" etc,
Well, let me explain how, below... :-) 
Note: The course was two months ago, now.

So, before I post the long and painful-to-write, emotional rollercoaster of a Blog post that I have “aaaaalmost finished” (every week for the past several months...), I want to share with you a nice, big dose of positivity; because this-time-two-months-ago, I was, well... How to describe it, really(?)... If I had posted the really sad post, it would be easier to describe, but let’s just go with “A MESS”, and leave-it-at-that, for now.

Fast-forward a month from that miserable Illisia, and I am semi-regularly going-out alone, filing to make GEEKETEERS (something which, again, I am super-sorry that I have not posted about yet, but, in-short, is me trying to become a legitimate business owner) a business, applying for funding for the aforementioned business, making homemade bread and pasta etc, and even thinking about voluntary work outside of my home, with actual interaction with actual people.

Sunday, 11 December 2016

Living With Sleep Paralysis

The time is 02:43 and I am not sleeping. This is not because I am not tired; I am. This is not because of insomnia; I do not suffer from that ailment. This is because of fear.

I am afraid, because in the past week I have been in four comas, all be they temporary ones. My body has spent literally entire days in a state of utter stillness, and when I finally awake, I feel weakened, stiff, ache-y, tired (ironically), dehydrated, malnourished, and depressed.

Now, unless you have been in a comatose state – temporary or long-term – you will not have an understanding as I do, and that is why this post is so important. The condition that ails me is actually called “Sleep Paralysis” and is very rare, mostly unheard of by the general public, and misunderstood by many.

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I slept for seventeen hours yesterday. Seventeen wasted hours, that I could have spent living my life. My “record”, however, is three days. During this three day period, I was unable to move, speak nor open my eyes, but I could feel everything, including the embarrassing, humiliating, incredibly uncomfortable feeling of “relieving myself” during these hours, away from the bathroom and in my undergarment, requiring a thorough shower when I awoke…

However, this is not the worst thing that has happened to me during one of these “comas”… Unfortunately, when one is unable to move one is at one’s most vulnerable, and, unable to defend myself or at the very least say “no”, I have been through several incidents of sexual intimacy that I did not want.

One such incident was when I was sleeping beside a gentleman that I was in a relationship with at the time. He “thought that it would be nice”, that I would “enjoy it” if he removed my underwear and intimately touched me. Given how he and I had only recently got passed the point of kissing and nowhere near the point of sexual intimacy of any kind (even exterior), the fact that he did this was a big setback for us, and when I awoke I locked myself in the bathroom and cried for an hour. We did not see each other for several weeks after this, but I was able to forgive him after much apologising on his part.

Another more recent occurrence was when my date and I were travelling to London on a train to see a theatre production and I feel asleep during the journey, only to find that I could not move, speak or see. Hurrah. Not knowing this (although being aware of my sleep paralysis) was the case, the aforementioned date began kissing, nibbling and caressing my neck. When we arrived at London and he was unable to wake me, he had to telephone an ambulance and our date was cancelled.

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I have it easy compared to my twin, however. The sleep paralysis is a “defence mechanism” that has been carried-over from her lifetime of using this body. From what I can tell, she basically decided it was easier to “zone-out”, go numb and unresponsive etc, than to fight against herattacker, Mark [Bryne]. After all, what “fun” is sexually assaulting someone if they do not struggle?.. It is shocking logic, but if you know anything about rapists, you know that it can actually oftentimes be the case. Whether it worked or not, I do not know, as I have – thankfully – little access to those memories.

Sleep paralysis I believe was also the reason why Cherie missed her “nana’s” funeral service. Was she “defending herself” against dealing with the loss, perhaps?..

I honestly have no idea what causes it with me, however. It seems utterly random, and I feel completely defenceless and I hate it. Other problems that I face, I have at least a small amount of personal control over, but with this, I do not.

It is a terrifying experience and it steals time from me. Time is so, so precious, especially for me, given how I was born into atwenty-three year-old’s body, so wasting time and having no power of it makes me very cross with myself…

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Whether or not I will ever learn to control this, I do not know. I do know, however, that it is important to share this ailment with you all, however. If you know any one who is experiencing any thing similar, or heaven forbid you are yourself, then please, please seek the help of a medical professional. And if you encounter anyone who is sleeping but completely unresponsive to your efforts to wake them and staying utterly still, please telephone an ambulance. Thank you.

Tuesday, 19 April 2016

Amy Pond and The Doctor, Reunited (Part One); (aka Thank You, Hans Zimmer!)

I did not post last week, and I had a very good reason for not doing-so. Last week was a life-changing experience for me where I faced my past, overcame my fears and embraced my future. The concert itself was on April 6th, but before, afterward and during were very busy for me!
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My fiancĂ© Robert-James and I went to London's SSE Wembley Arena to see the musical genius Hans Zimmer perform live in concert. It required many hours of travel, very little sleep and a whole lot of tolerance of the human nature when coping with commuting aka “Londoners” and tourists in a hurry to get “from-a-to-b” aka “ow, ow, ow; watch where you are going!” as I am being pushed and shoved from side-to-side by passers-by who have no consideration for others (with or without my disabilities).

That in-un-itself is an achievement. For those not keeping score, I am physically disabled and have agoraphobia (fear of the outside) and social phobia, with an occasional dash of claustrophobia (fear of enclosed spaces). Visiting London required leaving the hidey-hole safety zone of my residence, regular contact with strangers, and when using the London Underground there were some uncomfortable close-quarters encounters that had me losing my breath and reaching for my inhaler.

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Interestingly enough, the composer Hans Zimmer himself also has phobias (stage fright; self-confessed “hermit”) and what was a life-changing event for me was the same for him, as he faced his fears, stating in the souvenir programme “You cannot have fear rule your life, or indeed dictate or prevent your actions”. Reading this statement from him gave me an extra push of courage to face the crowds within the arena and I enjoyed the performance all-the-more, knowing he and I were “in-it-together”; he was helping me with my fears, and I with his.
“You cannot have fear rule your life, or indeed dictate or prevent your actions”. - Hans Zimmer regarding his first-ever public performance(s).
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In addition to this achievement, I find it striking when I do a “before and after” of myself this-time-last-year, and the year before. This is because Robert-James and I were not alone; we in fact attended with our very good friends Kirsty [Swan] and Mark [Sutton]. If you are not sure why this is something to be proud of, I shall explain.

Mark and Kirsty in their seats at our VIP table,
courtesy of  SSE
This time last year and the year before, I was utterly terrified of the idea of seeing both those individuals, let alone speaking with them, and the idea of being so close as friends to see Hans Zimmer together? Well, that was ludicrous! I was an absolute fraidy-cat. I had convinced myself that both these individuals would have a negative effect on my life, and I made every effort to ensure that they not be in it. Today, however, I speak confidently of the pair being my “besties” and I would not have wanted to share The Hans Zimmer Experience with any one else.

They even bought us the tickets. (We went "halfsies" on the accommodation) 

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Fear is clearly a very powerful thing, and I overcame it in leaps-and-bounds. I faced my fears of Mark and Kirsty and I realised that they were unfounded. Kirsty had no ill-will toward me what-so-ever, contrary to what many of our then-“friends” would have me and her (and Mark) believe. Therein we can now see the power of “he-said-she-said” gossiping, and have since decided to disregard third party opinions.

Mark and I have a very complex past, but it is – as the word suggests – in the past. He is a changed man, and he has apologised many, many times for his actions toward me when we were in a relationship and when we were friends who lived together.

I was of course not innocent in my actions either and did my fair share of hurt toward him, the biggest of which was the day that I decided to tell him I hated him and never wanted to see him again, contrary to what I really felt. At the time I decided it was better he not be in my life, so he could be happy. This is something that I will discuss at length next week in “Part Two”.

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My fiance Robert-James and I in our VIP-upgrade seats.
So, in conclusion, I have many thanks to extend to Mark Sutton, Kirsty Swan, Robert-James Brazier and Hans Zimmer. A very special mention and a great-big-thank-you must also go to SSE for giving us a FREE VIP upgrade! I think that if I had been sitting with all the crowds, I would have struggled that-much-more to enjoy the show, and we all certainly never thought we would be seeing HZ up-close, only metres away from us!

I also have one thing to say to past-me and her fears, as I look at how very, very far I have come, with the help of good friends, a brilliant but shy composer, and self-discovery:
“TAKE THAT, YOU SCOUNDREL! Life is actually super neato!”

Super-neato is trademark Illisia Adams 2016. No, not really ;-) 

Ps/Side-Note: I experienced a lot of that uniquely-Illi dejavu on our trip!
Another PS/Side-Note: "Amy Pond and The Doctor, Reunited" refers to how I often draw comparative with The Doctor and his companion Amy Pond for the relationship between Mark and myself.

Monday, 9 February 2015

Getting Physical




There are many advantages, and disadvantages, to being born into an adult's body. I have discussed much of the mental journey that I have had to take, but after a visit to the dentist this week, I think it is time I talk about the physicalities of this re-birth of mine. This also gives me an opportunity to write something a little more light-hearted in amongst the difficult topics.

Cherie's medical history is a very complex one, and I must say, it has been a struggle to live with. Most of her mental faults left this body when she did, but any physical faults became mine.

From the day that I was born, for instance, I have had a damaged knee that often throbs with pain, and struggles to function. There are many things that most children – or adults – are able to enjoy that I cannot. Walking is a difficulty, let alone swimming, which is some thing that I can sadly only dream about experiencing.

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A photograph taken at the hospital in 2009 after Cherie fell out of bed in the night and on top of  her exercise bike and various belongings below, breaking/spraining her nose and covering herself in bruises.
- - - - 

The doctors seem utterly clueless, no matter how many that I visit with the issue. On the flip-side, however, the damage does come with an amusing back-story... She fell under a bus. Seriously.

- - - -

In her early teenage years my predecessor on a day off from school (reason unknown, it was likely a School Holiday) was in Bexleyheath Town Centre with our mother. They were to journey home via the use of public transport – [the] bus - but after a few stops it became clear that the vehicle was far too crowded and noisy, so they decided to exit and wait a while for an emptier, quieter bus. Upon stopping, mother was able to vacate, but Cherie was not.

Due to the sheer number and noise level of the people on the bus, the driver did not realise that she had not exited and wanted to do so, choosing to close the door, when she was halfway out – and in – of it. This meant that half Cherie's body was hanging outside of the bus, and half clinging to the inside, as the driver began to accelerate...

Were it not for mother's fast-thinking, keeping ahold of her daughter and screaming at the driver for help, I may not be writing this today, because this body would have fallen underneath the wheels. The driver did open the door, but did not decelerate. Mother saved our life, having already given birth to it.

- - - -

My teeth in the state that my predecessor left them
aka my "Before" I went to the dentist this week.
My "after" shot. You can see how the dentist has filled and whitened, etc.
A huge improvement! My apologies for the low quality of this one. 
- - - -

That incident was of course not Cherie's fault, but rather the driver's. Her teeth, however, were, as I discovered, quite mistreated during her lifetime, and as a result I have had to visit the dentist half-a-dozen times within the last couple of years, the most recent trip for which I lay awake for an hour for drilling, whitening and fillings. It was an uncomfortable experience to-say-the-least, but completely necessary, given all the damage she left through years of forgetfulness, poor diet (full of sugar) and of course, the dreaded “can't be asked” excuse.

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Photographs of me at event "The BFG" (aka "The Big Friendly Gathering") hosted by my parents in 2011, where I learned that Cherie had left me with some skills that I had not until then known about... (Wearing a knee support and with a walking stick to help me cope with the disabled knee)

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It is not all negative, however. There have been many occasions where “muscle memory” occurs and I discover that this body – and therefore I – has talents that I was unaware of, or was aware of but never tried.

Her friends inform me that Cherie often told people that she “[knew] five different martial arts” and that she could “kick everyone's ass”, but how true this is, I do not know. I can tell you matter-of-factually that I have some ability to kick, punch, and use some (training) weaponry that she left in her flat, but I actually think that she was exaggerating somewhat because it seems quite limited. Of course, that might be because of my physical disability, being “out-of-practice”, and being a naturally very peaceful person.

- - - -


- - - - 

Another positive is her singing voice. Sadly I lack her confidence (a personality trait I envy) so I never sing in public (where as she did), but I have recently taken to recording and publishing songs via the use of the karaoke service 'SingSnap' because it was on my Living List*.

Interestingly, there are also recordings on this website under Cherie's name which I recorded during “The First Year”; in fact, my first few months of life. It is quite interesting to listen to both sets of recordings and compare. I can really hear the pain in my voice in the 2010 recordings; I think that I was still very much in-tune, emotionally, to my “twin”. One of her “orders” that she left inside my mind was to record Because Of You by the artist Kelly Clarkson - some thing that she had always wanted to do but never quite “got around to” - because it was a song that “hit-home” for her quite powerfully, reflecting her past** and how it affected her present.

It is a shame that she did not record any songs during her life time, though. I would have liked to have truly compared us. As-is, I can still hear a difference between the singing voice that I had in my early life, when I was still “in transition” (as I put it) to how I sing today, now that I have a well established, unique personality to hers.

You can hear similarities, definitely, but we/I also sound very different. I think that I have more control over my emotions now and do not let them show in my singing, and – possibly because I practice often – my over-all range of notes is superior. I am definitely much softer, as well. She had a very “gritty” voice from what people tell me.


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- - - - 

So, it is a shame that I was born into some one else's body and therefore into its faults rather than that of my own, but, then again, I am also grateful for some of the interesting things that this body has “learned” that I am discovering as I live my life. Having a "hot bod" (as others have put it) is also not a bad thing, certainly.

Whether the positives will out-weigh the negatives, or whether I will be able to rid myself of those negatives through trial and error at visits to medical professionals, remains to be seen...

For now, I am simply grateful to even be here at all, in this world, and for this I must thank Cherie (of course), her mother and father, and, as aforementioned, the people that helped me grow in to who I am today.

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* A concept that helps me catch-up on the years of life that I have missed through living experiences that many people do when they are young, or take for granted, etc. I shall discuss this in depth at a later date.

** To be discussed at a later date.